Base de datos : MEDLINE
Búsqueda : F01.100.125 [Categoria DeCS]
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  1 / 14905 MEDLINE  
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PMID:29437655
Autor:English T; Ribeiro B
Dirección:Oxford, UK tenglish@doctors.org.uk ribeirob@parliament.uk.
Título:Should doctor assisted dying be legal?
Fuente:BMJ; 360:k562, 2018 02 07.
ISSN:1756-1833
País de publicación:England
Idioma:eng
Tipo de publicación:JOURNAL ARTICLE


  2 / 14905 MEDLINE  
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PMID:29406651
Autor:Palmer M; Saviet M; Tourish J
Título:Understanding and Supporting Grieving Adolescents and Young Adults.
Fuente:Pediatr Nurs; 42(6):275-81, 2016 Nov-Dec.
ISSN:0097-9805
País de publicación:United States
Idioma:eng
Resumen:The adolescent and young adult years are a time of growth, change, and challenge. Experiencing the loss of a family member or friend during this period of life can have a profound effect on a young person's social functioning, physical and mental health, and development. Research demonstrates that the grief reactions of adolescents and young adults differ from those of adults, and that loss is an individual experience that varies widely throughout each developmental stage. Further, youth who struggle to cope with a significant loss without support and guidance are more likely to experience a greater intensity of grief and distress. When providing support to a grieving adolescent or young adult, it is important to understand normal development, appreciate common grief responses, and identify deviations. It is also important to know about available interventions and supportive strategies, specifically for this age group. With this knowledge, pediatric nurses and other helping professionals can tailor guidance, support, and referrals to suit the specific needs of individual bereaved youth.
Tipo de publicación:JOURNAL ARTICLE


  3 / 14905 MEDLINE  
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PMID:29206973
Autor:Johnson KJ; Hong M; Inoue M; Adamek ME
Dirección:School of Social Work, Indiana University-Purdue University Indianapolis.
Título:Social Work Should Be More Proactive in Addressing the Need to Plan for End of Life.
Fuente:Health Soc Work; 41(4):271-274, 2016 Nov 20.
ISSN:0360-7283
País de publicación:United States
Idioma:eng
Tipo de publicación:JOURNAL ARTICLE


  4 / 14905 MEDLINE  
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PMID:29369881
Autor:Paradisi J
Dirección:Julianna Paradisi finds inspiration where science, humanity, and art converge, creating compelling images as both a writer and a painter. She is the author of her own blog (https://jparadisirn.com) and also blogs frequently for www.theonc.org and Off the Charts. Off the Charts is coordinated by Jacob Molyneux, senior editor: jacob.molyneux@wolterskluwer.com.
Título:A Brief Meditation on Love, Loss, and Nursing.
Fuente:Am J Nurs; 118(2):67, 2018 Feb.
ISSN:1538-7488
País de publicación:United States
Idioma:eng
Tipo de publicación:JOURNAL ARTICLE


  5 / 14905 MEDLINE  
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PMID:29202668
Autor:Lee Mortensen G; Madsen IB; Krogsgaard R; Ejlertsen B
Dirección:a AnthroConsult , Aarhus C , Denmark.
Título:Quality of life and care needs in women with estrogen positive metastatic breast cancer: a qualitative study.
Fuente:Acta Oncol; 57(1):146-151, 2018 Jan.
ISSN:1651-226X
País de publicación:England
Idioma:eng
Resumen:BACKGROUND: In recent years, the prognosis of metastatic breast cancer (MBC) has improved with more effective therapies applicable to a wider range of patients. To many patients, a MBC diagnosis thus initiates a prolonged course of illness and treatment. This qualitative study aimed to explore the long-term health-related quality of life (HRQoL) and support needs in MBC patients of all ages in the Danish context. MATERIAL AND METHODS: Eighteen MBC patients participated in five qualitative focus group interviews that were analyzed using content analysis and a constructivist approach. RESULTS: The participants described how MBC severely reduced their physical and psychosocial functioning and required a constant adaptation of their quality of life (QoL) standards in relation to their changing life situation and disease progression. Overall, they felt medically well-treated but lacked a multidisciplinary approach to care including psychological support, in particular, but also manual physiotherapy, health care coordination and social counseling. The participants called for continuity of care with the same health care professionals as this facilitated communication and flexibility in planning treatment and controls. They requested a reduction of precious time spend on treatment to enable them to focus on their most meaningful relations and activities. CONCLUSION: With the MBC diagnosis, the focus of treatment switches from disease eradication to prolonging survival, alleviating symptoms and improving QoL. To patients, MBC marks a shift in expectations from quantity to quality of life and a perpetual adaptation of their QoL standards. To sustain patients' HRQoL, it is important that along with improvements in life-prolonging treatment, comprehensive care also supports their main psycho-social needs. These patients needed support in maintaining normality and role functioning enabling them to focus on living, not merely surviving, through this prolonged disease phase.
Tipo de publicación:JOURNAL ARTICLE


  6 / 14905 MEDLINE  
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PMID:29257629
Autor:Benn A
Título:DEALING WITH DEATH.
Fuente:Aust Nurs Midwifery J; 24(7):27, 2017 02.
ISSN:2202-7114
País de publicación:Australia
Idioma:eng
Resumen:One inevitable thing we all must address....is death. As soon as we are born, we are dying. Although part of the normal sequence of life, death encompasses grief, and grief is uncomfortable. So naturally death at times is avoided in general conversations, which can create fear surrounding the process.
Tipo de publicación:JOURNAL ARTICLE


  7 / 14905 MEDLINE  
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PMID:29051330
Autor:Cochran D; Saleem S; Khowaja-Punjwani S; Lantos JD
Dirección:Children's Medical Center, Dallas, Texas.
Título:Cross-Cultural Differences in Communication About a Dying Child.
Fuente:Pediatrics; 140(5), 2017 Nov.
ISSN:1098-4275
País de publicación:United States
Idioma:eng
Resumen:There are more migrants, refugees, and immigrants adrift in the world today than at any time in the recent past. Doctors and hospitals must care for people from many different cultures, countries, and religious backgrounds. We sometimes find our own deeply held beliefs and values challenged. In this "Ethics Rounds," we present a case in which a Pakistani immigrant family faces a tragic medical situation and wants to deal with it in ways that might be normative in their own culture but are aberrant in ours. We asked the American doctors and 2 Pakistani health professionals to think through the issues. We also invited the father to talk about his own experience and preferences. We conclude that strict adherence to Western ethical norms may not always be the best choice. Instead, an approach based on cultural humility may often allow people on both sides of a cultural divide to learn from one another.
Tipo de publicación:CASE REPORTS; JOURNAL ARTICLE


  8 / 14905 MEDLINE  
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PMID:28844163
Autor:Benkel I; Molander U
Dirección:1 University of Gothenburg, Sweden.
Título:A Qualitative Study of the Experiences of Parents With an Adult Child Who Has a Severe Disease: Existential Questions Will Be Raised.
Fuente:Inquiry; 54:46958017727107, 2017 Jan 01.
ISSN:1945-7243
País de publicación:United States
Idioma:eng
Resumen:A prominent existential concept is that elderly parents should naturally become severely ill or die before a younger person does. If the reverse should happen, it may influence the parent's existential view of life. The aim of this study was to investigate the existential issues during illness time. This was a qualitative study with in-depth interviews and was conducted in a University Hospital in western Sweden. Eleven parents agreed to participate in individual interviews at baseline and 1 year later. The total number of interviews completed was 19. The study identified 5 areas according to an existential perspective: life took the wrong path, the age of the child, difficult to see the child as sick, worrying about the child, and the relationship with the adult child. Existential questions are often present in those circumstances and can be raised in conversations with parents. Existential questions began to arise for the parent when the child was diagnosed with the severe illness. The situation of having a severely ill child caused both fear and anxiety that the worst-case scenario they could imagine, that the child will die, might happen. Further research is required on this rarely investigated subject of having an adult child with a severe disease.
Tipo de publicación:JOURNAL ARTICLE


  9 / 14905 MEDLINE  
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PMID:28787258
Autor:Beernaert K; Kreicbergs U; Fürst CJ; Nyberg T; Steineck G; Bylund-Grenklo T
Dirección:Kim Beernaert, Vrije Universiteit Brussel and Ghent University, Brussels, Belgium; Ulrika Kreicbergs, Ersta Sköndal Bräcke University College; Ulrika Kreicbergs, Tommy Nyberg, Gunnar Steineck, and Tove Bylund-Grenklo, Karolinska Institutet, Stockholm; Carl Johan Fürst, Lund University, Lund; Gunnar
Título:Distrust in the End-of-Life Care Provided to a Parent and Long-Term Negative Outcomes Among Bereaved Adolescents: A Population-Based Survey Study.
Fuente:J Clin Oncol; 35(27):3136-3142, 2017 Sep 20.
ISSN:1527-7755
País de publicación:United States
Idioma:eng
Resumen:Purpose Previous research shows that the death of a parent places children at risk for a number of negative outcomes. The role of trust in health care at the end of life has been acknowledged as crucial for patients and adult family members. However, the consequences of children's distrust in the care provided to their parents remain unknown. Therefore, we investigated the negative long-term outcomes of cancer-bereaved sons' and daughters' distrust in the care that was provided to a dying parent. Methods We used a population-based nationwide survey to investigate self-reported distrust in the care provided and possible negative outcomes in 622 (73%) participants who had lost a parent as a result of cancer 6 to 9 years earlier, at ages 13 to 16 years. All participants were 18 years or older at the time of the survey. Results In those who reported no or little trust (ie, distrust) in the health care provided to their dying parents, we found statistically significantly higher risks of various negative outcomes at the time of survey: bitterness toward health care professionals for not having done everything that was possible (crude risk ratio [RR], 3.5; 95% CI, 2.3 to 5.1) and for having stopped treatment (RR, 3.4; 95% CI, 2.1 to 6.0), self-destructiveness (eg, self-injury [RR, 1.7; 95% CI, 1.2 to 2.4]), and psychological problems (eg, moderate to severe depression according to the Patient Health Questionnaire-9 [RR, 2.3; 95% CI, 1.5 to 3.5]). Conclusion In cancer-bereaved former adolescents, distrust in the health care provided to the dying parent is associated with a higher risk of negative long-term outcomes. The health care professionals involved in this care might play an important role in safeguarding the trust of adolescents.
Tipo de publicación:JOURNAL ARTICLE


  10 / 14905 MEDLINE  
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PMID:28767307
Autor:While A
Dirección:Emeritus Professor of Community Nursing, King's College London, Florence Nightingale Faculty of Nursing and Midwifery and Fellow of the QNI.
Título:No more excuses….
Fuente:Br J Community Nurs; 22(8):414, 2017 Aug 02.
ISSN:1462-4753
País de publicación:England
Idioma:eng
Tipo de publicación:JOURNAL ARTICLE



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