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  1 / 78381 MEDLINE  
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PMID:28661387
Autor:Serwe KM; Hersch GI; Pickens ND; Pancheri K
Dirección:Katrina M. Serwe, PhD, OTR, is Assistant Professor, Department of Occupational Therapy, Concordia University Wisconsin, Mequon; katrina.serwe@cuw.edu.
Título:Caregiver Perceptions of a Telehealth Wellness Program.
Fuente:Am J Occup Ther; 71(4):7104350010p1-7104350010p5, 2017 Jul/Aug.
ISSN:0272-9490
País de publicación:United States
Idioma:eng
Resumen:OBJECTIVE: We sought to understand caregivers' experience of an education-based wellness program delivered using telehealth. METHOD: In this qualitative pilot study, 4 caregivers participated in a focus group after completing a 6-wk telehealth program. Data analysis involved open coding, thematic analysis, and coding triangulation. RESULTS: Two major themes emerged. The first, "I feel like I am now prepared," included the subthemes of strategies for caregiver self-maintenance, the understanding that caregiving is a normal process, and the value of a group experience. The second theme, "It was just a good interaction," included the subthemes of benefits of telehealth, challenges of telehealth, and process of learning the technology. CONCLUSION: Participant discussion of the content learned and the value of group support indicated that telehealth was effective in both promoting learning and facilitating relationships. Even with challenges, participants reported an overall positive experience. Telehealth holds promise for increasing access to health promotion programs.
Tipo de publicación:JOURNAL ARTICLE; RESEARCH SUPPORT, NON-U.S. GOV'T


  2 / 78381 MEDLINE  
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PMID:28339523
Autor:Jankowska-Polanska B; Uchmanowicz I; Wysocka A; Uchmanowicz B; Lomper K; Fal AM
Dirección:Department of Clinical Nursing, Wroclaw Medical University, Poland.
Título:Factors affecting the quality of life of chronic dialysis patients.
Fuente:Eur J Public Health; 27(2):262-267, 2017 Apr 01.
ISSN:1464-360X
País de publicación:England
Idioma:eng
Resumen:Background: Patients on hemodialysis must adjust their life plans to the treatment. They are aware of losing their health and independence. Therefore, acceptance of illness (AI) is important and allows the patient to adjust to new situation and alleviates negative emotions. Methods: The aim of study was to assess the impact of AI and other socioclinical variables on hemodialysis patients' quality of life (QoL). The study included 100 patients aged 20-85 (M = 57), treated with hemodialysis for at least 2 years. Two validated instruments were used: the Acceptance of Illness Scale (AIS) and the World Health Organization Quality of Life questionnaire. Results: High, moderate and low level of AI was found for 15, 61 and 24 patients, respectively. The QoL increased with the AI score. In physical domain, it reached 69.8 ± 12.4 in the high AIS group, 54.2 ± 15.3 in the moderate AIS group and 42.7 ± 12.3 in the low AIS group ( P < 0.001). The psychological domain scores were 70.3 ± 12.8, 57.2 ± 15.0 and 49.7 ± 11.8 ( P < 0.001), respectively. The environmental domain scores were 68.8 ± 13.3,59.0 ± 12.6 and 53.0 ± 11.6 ( P < 0.001), respectively. AIS scores were positively correlated with QoL in three domains: physical ( r = 0.549; P < 0.0001), psychological ( r = 0.505; P < 0.0001) and environmental ( r = 0.444; P < 0.0001). In multiple-factor analysis, AI was independent predictors in physical domains (ß = +0.210), psychological domain (ß = +0.402) and environmental domain (ß = +0.204). No correlation or predictive value was found for the social relationship domain, however. Conclusions: Patients on dialysis have moderate-to-low AI. AI is an independent predictor positively correlated with QoL in all domains except for social relationships. The social and psychological support for dialyzed patient might improve their HRQoL and illness acceptance.
Tipo de publicación:JOURNAL ARTICLE


  3 / 78381 MEDLINE  
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PMID:28087202
Autor:Guyard A; Michelsen SI; Arnaud C; Fauconnier J
Dirección:UGA/CNRS/CHU de Grenoble, TIMC-IMAG UMR 5525, Themas, Grenoble F-38041, France. Electronic address: AGuyard1@chu-grenoble.fr.
Título:Family adaptation to cerebral palsy in adolescents: A European multicenter study.
Fuente:Res Dev Disabil; 61:138-150, 2017 Feb.
ISSN:1873-3379
País de publicación:United States
Idioma:eng
Resumen:BACKGROUND AND AIM: Factors promoting family adaptation to child's disability are poorly studied together. The aim of the study was to describe the family adaptation to disability and to identify determinants associated with using a global theoretical model. MATERIALS AND METHODS: 286 families of teenagers [13-17 years] with cerebral palsy (CP) from 4 European disability registers were included and visited at home. Face to face interviews were performed in order to measure parental distress, perceived impact in various dimensions of family life, family resources and stressors. Relationships were modelled with structural equations. RESULTS: 31.8% of parents living with an adolescent with CP showed clinically significant high stress requiring professional assistance. The main stressors were the level of motor impairment and behavioural disorders in adolescent. A good family functioning was the best protective factor. Respite in care and a parents' positive attitude were significantly related to less parental distress. Material support, socioeconomical level, marital status or parental qualifications did not appear to be significant protector factors. CONCLUSIONS: Particular attention must be paid not only on physical condition but also on adolescent psychological problems to improve family adaptation. Families at risk of experiencing severe distress should be targeted early and proactive caregiver interventions on the whole family should be performed. WHAT THIS PAPER ADDS: Family is a dynamic system: facing disability, it tries to recover its balance with available resources and its perception of the situation. Literature highlights potential stressors and protecting factors that could affect the disabled child's family adaptation but few papers study a global model including most of these factors. This study validated a global theoretical model of family adaptation to disability at adolescence. It identified behaviour disorders and motor impairment level as main stressors, family functioning as the largest protecting factors, and equipment and financial support as non significant protective factors.
Tipo de publicación:JOURNAL ARTICLE; MULTICENTER STUDY


  4 / 78381 MEDLINE  
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PMID:27917482
Autor:Gamble A; Chatfield SL; Cormack ML; Hallam JS
Dirección:University of Mississippi Medical Center, 2500 North State Street, Jackson, MS 39216.
Título:Not Enough Time in the Day: A Qualitative Assessment of In-School Physical Activity Policy as Viewed by Administrators, Teachers, and Students.
Fuente:J Sch Health; 87(1):21-28, 2017 Jan.
ISSN:1746-1561
País de publicación:United States
Idioma:eng
Resumen:BACKGROUND: In recent decades, the alignment of health and education has been at the forefront of school reform. Whereas the establishment of national in-school physical activity (ISPA) recommendations and state-level mandates demonstrates success, there has been less achievement in areas that address health disparities. The purpose of this investigation was to explore barriers and facilitators to implementing state-mandated ISPA policies in the Mississippi Delta. METHODS: Focus groups or interviews were conducted with district administrators, school principals, teachers, and students. A total of 2 semistructured moderator guides were developed to focus on (1) student ISPA practices and preferences and (2) facilitators and barriers to implementing ISPA policies and practices. RESULTS: A total of 6 themes were developed. In that, 2 themes addressed participant-described barriers (primary challenges and interferences and excuses). Three themes highlighted participant-described facilitators (compromises, things that work, and being active at school). Finally, 1 theme encompassed the participant-described need to address educating the whole child. CONCLUSIONS: There is a critical need for meaningful and relevant solutions to circumvent challenges to implementing ISPA policies and practices in the Mississippi Delta. The Whole School, Whole Community, Whole Child model offers a broad means of visualizing rural, low-income, racially concentrated schools to circumvent challenges and foster ISPA policies and practices.
Tipo de publicación:JOURNAL ARTICLE


  5 / 78381 MEDLINE  
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PMID:28229350
Autor:Reiff M; Bugos E; Giarelli E; Bernhardt BA; Spinner NB; Sankar PL; Mulchandani S
Dirección:Division of Translational Medicine and Human Genetics, Perelman School of Medicine, University of Pennsylvania, 3624 Market Street, Philadelphia, PA, 19104, USA. mreiff@upenn.edu.
Título:"Set in Stone" or "Ray of Hope": Parents' Beliefs About Cause and Prognosis After Genomic Testing of Children Diagnosed with ASD.
Fuente:J Autism Dev Disord; 47(5):1453-1463, 2017 May.
ISSN:1573-3432
País de publicación:United States
Idioma:eng
Resumen:Despite increasing utilization of chromosomal microarray analysis (CMA) for autism spectrum disorders (ASD), limited information exists about how results influence parents' beliefs about etiology and prognosis. We conducted in-depth interviews and surveys with 57 parents of children with ASD who received CMA results categorized as pathogenic, negative or variant of uncertain significance. Parents tended to incorporate their child's CMA results within their existing beliefs about the etiology of ASD, regardless of CMA result. However, parents' expectations for the future tended to differ depending on results; those who received genetic confirmation for their children's ASD expressed a sense of concreteness, acceptance and permanence of the condition. Some parents expressed hope for future biomedical treatments as a result of genetic research.
Tipo de publicación:JOURNAL ARTICLE


  6 / 78381 MEDLINE  
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PMID:28886960
Autor:Larramendy Magnin S; Desssome B; Moret L
Dirección:Département de médecine générale, faculté de médecine de Nantes, 1, rue Gaston-Veil, 44035 Nantes cedex, France. Electronic address: slarramendymagnin@gmail.com.
Título:[Indoor air quality and parents of asthmatic children practices].
Título:Pratiques impactant la qualité de l'air intérieur du domicile de l'enfant asthmatique..
Fuente:Rev Epidemiol Sante Publique; 65(5):337-347, 2017 Sep.
ISSN:0398-7620
País de publicación:France
Idioma:fre
Resumen:BACKGROUND: Indoor air pollution can worsen asthma in children. Better knowledge of factors determining parents' reception of recommendations to limit pollution of indoor air in the homes of asthmatic children would be helpful to improve implementation. METHOD: A descriptive study evaluating practices known to have an impact on the quality of air in homes was conducted among parents of asthmatic children aged 3 to 16 years. From May to September 2013, parents answered anonymous self-administered questionnaires in waiting rooms of generalist practitioners, in the Nantes University pneumology pediatric outpatient clinic, and as part of therapeutic education sessions conducted by the Asthma-44 Network. RESULTS: There were 190 exploitable questionnaires: 88.2% of parents reported never smoking in the home; 48.4% used home fragrance in the living room at least once a week; 77.8% opened their children's bedroom windows more than 10minutes at least once a day; 32.6% used several cleaning products or bleach once or twice a week. Good practices concerning smoking in housing were applied less in homes where the child was monitored only by a general practitioner (OR=0.08; CI[0.02-0.34]). Good practices on the use of perfume were statistically linked to having an intermediate level occupation (OR=2.31; CI[1.01-5.32]) and being followed by the university hospital, by the asthma network or by a general practitioner if the child had already consulted a pneumo-pediatrician or an allergist (OR=0.24; CI[0.07-0.81]). Good ventilation practices forchildren's bedrooms were statistically linked to residing in a rural rather than urban setting (OR=4.72; CI[1.0-22.16]). CONCLUSION: Practices observed in parents of asthmatic children differ little from those of the general population. Recommendations on how to limit sources of chemical pollutants, with the exception of smoking, are still poorly applied. Specialist consultations and specific training for general practitioners should improve the penetration of public health messages to this vulnerable population.
Tipo de publicación:JOURNAL ARTICLE


  7 / 78381 MEDLINE  
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PMID:28450345
Autor:Manacorda T; Erens B; Black N; Mays N
Dirección:Policy Innovation Research Unit, Department of Health Services Research and Policy, London School of Hygiene and Tropical Medicine, London.
Título:The Friends and Family Test in general practice in England: a qualitative study of the views of staff and patients.
Fuente:Br J Gen Pract; 67(658):e370-e376, 2017 May.
ISSN:1478-5242
País de publicación:England
Idioma:eng
Resumen:BACKGROUND: The Friends and Family Test (FFT) was introduced into general practices in England in 2015 to provide staff with information on patients' views of their experience of care. AIM: To examine the views of practice staff and patients of the FFT, how the results are used, and to recommend improvements. DESIGN AND SETTING: A qualitative study of a national representative sample of 42 general practices. METHOD: Semi-structured interviews with 43 clinicians, 48 practice managers, and 27 patient representatives. Interviews were audiotaped, transcribed, and analysed thematically. RESULTS: Although the FFT imposed little extra work on practices, it was judged to provide little additional insight over existing methods and to have had minimal impact on improving quality. Staff lacked confidence in the accuracy of the results given the lack of a representative sample and the risk of bias. The FFT question was judged to be inappropriate as in many areas there was no alternative practice for patients to choose, patients' individual needs would not be the same as those of their friends and relatives, and an overall assessment failed to identify any specific aspects of good- or poor-quality care. Despite being intended to support local quality improvement, there was widespread unease about the FFT, with many responders perceiving it as a tool for national bodies to monitor general practices. CONCLUSION: If the use of a single-item questionnaire is to continue, changes should be made to the wording. It should be focused on stimulating local quality improvement, and practice staff should be supported to use the results effectively.
Tipo de publicación:JOURNAL ARTICLE


  8 / 78381 MEDLINE  
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PMID:28087894
Autor:Bray JE; Smith K; Case R; Cartledge S; Straney L; Finn J
Dirección:Department of Epidemiology and Preventive Medicine, Monash University, Melbourne, Victoria, Australia.
Título:Public cardiopulmonary resuscitation training rates and awareness of hands-only cardiopulmonary resuscitation: a cross-sectional survey of Victorians.
Fuente:Emerg Med Australas; 29(2):158-164, 2017 Apr.
ISSN:1742-6723
País de publicación:Australia
Idioma:eng
Resumen:OBJECTIVES: To provide contemporary Australian data on the public's training in cardiopulmonary resuscitation (CPR) and awareness of hands-only CPR. METHODS: A cross-sectional telephone survey in April 2016 of adult residents of the Australian state of Victoria was conducted. Primary outcomes were rates of CPR training and awareness of hands-only CPR. RESULTS: Of the 404 adults surveyed (mean age 55 ± 17 years, 59% female, 73% metropolitan residents), 274 (68%) had undergone CPR training. Only 50% (n = 201) had heard of hands-only CPR, with most citing first-aid courses (41%) and media (36%) as sources of information. Of those who had undergone training, the majority had received training more than 5 years previously (52%) and only 28% had received training or refreshed training in the past 12 months. Most received training in a formal first-aid class (43%), and received training as a requirement for work (67%). The most common reasons for not having training were: they had never thought about it (59%), did not have time (25%) and did not know where to learn (15%). Compared to standard CPR, a greater proportion of respondents were willing to provide hands-only CPR for strangers (67% vs 86%, P < 0.001). CONCLUSION: From an Australian perspective, there is still room for improvement in CPR training rates and awareness of hands-only CPR. Further promotion of hands-only CPR and self-instruction (e.g. DVD kits or online) may see further improvements in CPR training and bystander CPR rates.
Tipo de publicación:JOURNAL ARTICLE


  9 / 78381 MEDLINE  
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PMID:27776604
Autor:De Andrés-García S; Cano-López I; Moya-Albiol L; González-Bono E
Dirección:Universitat de València.
Título:Negative affect, perceived health, and endocrine and immunological levels in caregivers of offspring with schizophrenia.
Fuente:Psicothema; 28(4):377-382, 2016 Nov.
ISSN:1886-144X
País de publicación:Spain
Idioma:eng
Resumen:BACKGROUND: Negative affect (NA) and chronic stress are separately associated with health imbalances, and the interaction between the two aspects remains unclear. Care of relatives with long-term pathologies could be a likely model in the study of this issue, as caregivers frequently report chronic stress and health complaints. The aim of this study is examine the role of NA on psychophysiological stress-induced response and health in schizophrenia caregivers. METHOD: Forty-one caregivers were distributed into two groups accordingly to their scores in NA. Thirteen non-caregivers were included as a control group. Participants were exposed to a repeated acute psychosocial stress while salivary cortisol, immunoglobulin A (IgA), and skin conductance level (SCL) were measured before, during, and after stress. Mood, state-anxiety, care conditions and perceived general health were also assessed. RESULTS: Caregivers with higher NA reported negative perceptions, worse health, and greater decreases in cortisol and IgA response than caregivers with low NA and than non-caregivers. CONCLUSIONS: NA could reduce the capability to develop adaptive psychophysiological stress responses. From a preventive view, the evaluation of NA could be useful to detect and assist high-risk individuals in potentially chronically stressed populations.
Tipo de publicación:JOURNAL ARTICLE
Nombre de substancia:0 (Antibodies); WI4X0X7BPJ (Hydrocortisone)


  10 / 78381 MEDLINE  
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PMID:28720919
Autor:El-Awaisi A; Awaisu A; El Hajj MS; Alemrayat B; Al-Jayyousi G; Wong N; Verjee MA
Dirección:College of Pharmacy, Qatar University, Doha, Qatar.
Título:Delivering Tobacco Cessation Content in the Middle East Through Interprofessional Learning.
Fuente:Am J Pharm Educ; 81(5):91, 2017 Jun.
ISSN:1553-6467
País de publicación:United States
Idioma:eng
Resumen:To explore the attitudes of pharmacy, pharmacy technician, medical, and public health students before and after an IPE activity that focused on smoking cessation in the Middle East. A pre-post intervention research design using the Readiness for Interprofessional Learning Scale (RIPLS) was used for this study. The tool contained 20 items, categorized under the following subscales: teamwork and collaboration, professional identity, and patient-centeredness. A total of 47 out of 50 students from four different health disciplines in Qatar (medicine, pharmacy, pharmacy technician, and public health) who participated in the activity completed a pre- and post-intervention pre-validated questionnaire (94% response rate). Total attitude scores were calculated for all the 20 items along with attitudinal scores of the three domains. Most of the students reported having a positive attitude toward IPE; the number of students having a positive attitude toward IPE increased after the IPE session. The overall median (IQR) score increased from 82 (16) before the session to 84 (15) after the session. Students from different disciplines did not vary in their attitude scores. Health care professional students in Qatar perceived IPE positively, believing that it enhanced their communication skills, collaboration and appreciation of professional roles. This study has implication on developing effective methods to implement IPE in various health professional education curricula.
Tipo de publicación:COMPARATIVE STUDY; JOURNAL ARTICLE



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