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  1 / 11258 MEDLINE  
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PMID:29210185
Autor:Camlin CS; Charlebois ED; Geng E; Semitala F; Wallenta J; Getahun M; Kampiire L; Bukusi EA; Sang N; Kwarisiima D; Clark TD; Petersen ML; Kamya MR; Havlir DV
Dirección:University of California, San Francisco, CA, USA.
Título:Redemption of the "spoiled identity:" the role of HIV-positive individuals in HIV care cascade interventions.
Fuente:J Int AIDS Soc; 20(4), 2017 Dec.
ISSN:1758-2652
País de publicación:Switzerland
Idioma:eng
Resumen:INTRODUCTION: The concept of "therapeutic citizenship" has drawn attention to ways in which public testimony, the "story-telling in the public sphere" undertaken by people living with HIV (PLHIV), has shaped the global response to the epidemic. This paper presents qualitative findings from two large studies in eastern Africa that reveal how the advent of population-based HIV testing campaigns and efforts to accelerate antiretroviral "treatment for all" has precipitated a rapidly expanding therapeutic citizenship "project," or social movement. The title of this paper refers to Goffman's original conceptualization of stigma as a social process through which a person's identity is rendered "spoiled." METHODS: Data were derived from qualitative studies embedded within two clinical trials, Sustainable East African Research in Community Health (SEARCH) (NCT# 01864603) in Kenya and Uganda, and START-ART (NCT# 01810289) in Uganda, which aimed to offer insights into the pathways through which outcomes across the HIV care continuum can be achieved by interventions deployed in the studies, any unanticipated consequences, and factors that influenced implementation. Qualitative in-depth semi-structured interviews were conducted among cohorts of adults in 2014 through 2015; across both studies and time periods, 217 interviews were conducted with 166 individuals. Theoretically informed, team-based analytic approaches were used for the analyses. RESULTS: Narratives from PLHIV, who have not always been conceptualized as actors but rather usually as targets of HIV interventions, revealed strongly emergent themes related to these individuals' use of HIV biomedical resources and discourses to fashion a new, empowered subjecthood. Experiencing the benefits of antiretroviral therapy (ART) emboldens many individuals to transform their "spoiled" identities to attain new, valorized identities as "advocates for ART" in their communities. We propose that the personal revelation of what some refer to as the "gospel of ARVs," the telling of personal stories about HIV in the public sphere and actions to accompany other PLHIV on their journey into care, is driven by its power to redeem the "spoiled identity:" it permits PLHIV to overcome self-stigma and regain full personhood within their communities. CONCLUSIONS: PLHIV are playing an unanticipated but vital role in the successful implementation of HIV care cascade interventions.
Tipo de publicación:JOURNAL ARTICLE


  2 / 11258 MEDLINE  
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PMID:28630362
Autor:Cerceo E
Dirección:Assistant Professor, Division of Hospital Medicine, and Associate Program Director of the Internal Medicine Residency, Cooper Medical School of Rowan University, Camden, NJ.
Título:The spaces in between.
Fuente:CMAJ; 189(24):E838-E839, 2017 06 19.
ISSN:1488-2329
País de publicación:Canada
Idioma:eng
Tipo de publicación:JOURNAL ARTICLE; PERSONAL NARRATIVES


  3 / 11258 MEDLINE  
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PMID:28529231
Autor:Zimmermann M
Título:Alzheimer's Disease Metaphors as Mirror and Lens to the Stigma of Dementia.
Fuente:Lit Med; 35(1):71-97, 2017.
ISSN:0278-9671
País de publicación:United States
Idioma:eng
Resumen:This essay gives an overview of the metaphors that patients in comparison to caregivers employ to conceptualize their experience with the chronic degenerative, cognitive, and incurable aspects of Alzheimer's disease. It explores how the images (such as the journey, darkness, the death sentence, and torture) relate to the narration of cognitive decline and memory loss, and how these personal accounts negotiate with the culturally dominant dementia narrative that centers on the patient's passivity and dependence and is, usually, found in caregiver stories. This analysis, based on English, French, and German language texts, argues that the metaphors of this mainstream dementia narrative are, first, grounded in medico-scientific dementia discourse and, second, encapsulated in "Alzheimer's disease" as metaphor itself.
Tipo de publicación:JOURNAL ARTICLE


  4 / 11258 MEDLINE  
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PMID:28483849
Autor:Mulder J
Dirección:WRHA Palliative Care Consultant, Winnipeg, Man., Retired.
Título:Calling.
Fuente:CMAJ; 189(18):E671-E672, 2017 05 08.
ISSN:1488-2329
País de publicación:Canada
Idioma:eng
Tipo de publicación:JOURNAL ARTICLE; PERSONAL NARRATIVES


  5 / 11258 MEDLINE  
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PMID:28477758
Autor:Bioy A
Dirección:Université de Bourgogne Franche Comté, esplanade Erasme, Pôle AAFE, 21000 Dijon, France. Electronic address: Antoine.bioy@u-bourgogne.fr.
Título:[Adaptation strategies faced with chronic pain].
Título:Stratégies d'adaptation face à la douleur chronique..
Fuente:Soins; 62(815):36-37, 2017 May.
ISSN:0038-0814
País de publicación:France
Idioma:fre
Resumen:Chronic pain constitutes a challenge for patients. It makes them uneasy with regard to their personality, their corporality and their life balance, and leaves long-lasting effects on their experience as a patient. The development of adaptation strategies and resources to deal with chronic pain is therefore essential.
Tipo de publicación:JOURNAL ARTICLE


  6 / 11258 MEDLINE  
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PMID:28477755
Autor:Joussellin C
Dirección:Hôpital Bichat Claude-Bernard (AP-HP), 46, rue Henri-Huchard, 75018 Paris, France. Electronic address: charles@joussellin.fr.
Título:[The management of patients with chronic pain].
Título:Le patient douloureux chronique et sa prise en charge..
Fuente:Soins; 62(815):26-29, 2017 May.
ISSN:0038-0814
País de publicación:France
Idioma:fre
Resumen:Managing a patient with chronic pain represents, firstly, a meeting between two people - patient and caregiver - during which a mutual and reciprocal recognition must be built. The links between the meaning given to a pain, always singular, and the resulting suffering, depends on the history, culture, issues involved, circumstances and language possibilities of the person experiencing it.
Tipo de publicación:JOURNAL ARTICLE


  7 / 11258 MEDLINE  
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PMID:28363323
Autor:Ling W
Dirección:University of California, Los Angeles, Department of Psychiatry and Biobehavioral Science, 11075 Santa Monica Blvd, #200, Los Angeles, CA 90025, United States. Electronic address: lwalter@ucla.edu.
Título:Prescription opioid addiction and chronic pain: More than a feeling.
Fuente:Drug Alcohol Depend; 173 Suppl 1:S73-S74, 2017 Apr 01.
ISSN:1879-0046
País de publicación:Ireland
Idioma:eng
Resumen:A patient, long before becoming the subject of medical scrutiny is, at first simply a storyteller, a narrator of suffering-a traveler who has visited the kingdom of the ill. "To relieve an illness one must begin, then, by understanding the story." The Emperor of All Maladies; Siddhartha Mukherjee.
Tipo de publicación:COMPARATIVE STUDY; JOURNAL ARTICLE
Nombre de substancia:0 (Analgesics, Opioid)


  8 / 11258 MEDLINE  
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PMID:28272570
Autor:Ericsson K
Título:Når kroppen vitner mot deg..
Fuente:Tidsskr Nor Laegeforen; 137(5):378-379, 2017 Mar.
ISSN:0807-7096
País de publicación:Norway
Idioma:nor
Tipo de publicación:JOURNAL ARTICLE; PERSONAL NARRATIVES


  9 / 11258 MEDLINE  
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PMID:28230427
Autor:Hughes N; Williams J; Shaw C
Dirección:3rd Year BSc Nursing (Child Health), Bucks New University, Uxbridge.
Título:Supporting the psychological needs of teenagers and young adults during cancer treatment: a literature review.
Fuente:Br J Nurs; 26(4):S4-S10, 2017 Feb 23.
ISSN:0966-0461
País de publicación:England
Idioma:eng
Resumen:BACKGROUND: The developmental period of the teenage years and young adulthood can be a challenging time for most. Experiencing a diagnosis of cancer during this time inevitably presents further challenges and concerns. Identifying such issues can help to provide better ways of understanding the patients' experience and their needs, offering nurses insight to enhance care and support for teenagers and young adults (TYAs) undergoing cancer treatments. AIM: To explore the literature regarding the psychological issues faced by TYAs during cancer treatment to inform nursing practice. METHOD: A systematic search of electronic databases was conducted using predetermined search terms which yielded relevant articles. Applying an inclusion and exclusion criteria identified six articles that were deemed appropriate to explore the focus question. RESULTS: A thematic analysis identified three main themes and five sub-themes: anxieties about treatment, concerns regarding the impact on life (feeling restricted and different, the benefits of being sick, facing uncertainty) and coping strategies (positive thinking and problem solving, support). CONCLUSION: Teenagers and young adults face a unique set of psychological concerns and challenges during cancer treatment, resulting in the development of specific coping strategies. These strategies should be promoted by nurses, ensuring patients are supported throughout their cancer journey.
Tipo de publicación:JOURNAL ARTICLE; REVIEW


  10 / 11258 MEDLINE  
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PMID:28169599
Autor:Seiler A; Büel-Drabe N; Jenewein J
Dirección:1 Klinik für Psychiatrie und Psychotherapie, Universitätsspital Zürich.
Título:Die Behandlung der tumorassoziierten Fatigue bei Brustkrebs..
Fuente:Praxis (Bern 1994); 106(3):135-142, 2017 Feb.
ISSN:1661-8157
País de publicación:Switzerland
Idioma:ger
Tipo de publicación:JOURNAL ARTICLE; REVIEW



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