[PMID]: | 28415968 |
[Au] Autor: | Novais T; Dauphinot V; Krolak-Salmon P; Mouchoux C |
[Ad] Endereço: | EA-7425 HESPER, Health Services and Performance Research, University Lyon, F-69003, Lyon, France. teddy.novais@chu-lyon.fr. |
[Ti] Título: | How to explore the needs of informal caregivers of individuals with cognitive impairment in Alzheimer's disease or related diseases? A systematic review of quantitative and qualitative studies. |
[So] Source: | BMC Geriatr;17(1):86, 2017 Apr 17. |
[Is] ISSN: | 1471-2318 |
[Cp] País de publicação: | England |
[La] Idioma: | eng |
[Ab] Resumo: | BACKGROUND: This study aims to review the methodologies used to identify the needs, the existing needs assessment instruments and the main topics of needs explored among caregivers of patients with mild cognitive impairment to dementia. METHODS: MEDLINE, PsycINFO, The Cochrane Library and Web of science were searched from January 1980 to January 2017. Research studies in English or French were eligible for inclusion if they fulfilled the following criteria: quantitative, qualitative and mixed method studies that used instrument, focus group or semi-structured interviews to assess the informal caregiver's needs in terms of information, coping skills, support and service. RESULTS: Seventy studies (n = 39 quantitative studies, n = 25 qualitative studies and n = 6 mixed method studies) met the inclusion criteria and were included. Thirty-six quantitative instruments were identified but only one has been validated for the needs assessment of dementia caregivers: the Carer's Needs Assessment for Dementia (CNA-D). The main areas of needs explored in these instruments were: information, psychosocial, social, psychoeducational and other needs. CONCLUSIONS: No instrument has been developed and validated to assess the needs of informal caregivers of patients with cognitive impairment, whatever the stage and the etiology of the disease. As the perceived needs of caregivers may evolve with the progression of the disease and the dementia transition, their needs should be regularly assessed. |
[Mh] Termos MeSH primário: |
Doença de Alzheimer/complicações Cuidadores/psicologia Disfunção Cognitiva Fadiga por Compaixão
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[Mh] Termos MeSH secundário: |
Disfunção Cognitiva/etiologia Disfunção Cognitiva/psicologia Disfunção Cognitiva/terapia Fadiga por Compaixão/etiologia Fadiga por Compaixão/prevenção & controle Fadiga por Compaixão/psicologia Efeitos Psicossociais da Doença Progressão da Doença Seres Humanos Determinação de Necessidades de Cuidados de Saúde Apoio Social
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[Pt] Tipo de publicação: | JOURNAL ARTICLE; REVIEW |
[Em] Mês de entrada: | 1705 |
[Cu] Atualização por classe: | 170522 |
[Lr] Data última revisão:
| 170522 |
[Sb] Subgrupo de revista: | IM |
[Da] Data de entrada para processamento: | 170419 |
[St] Status: | MEDLINE |
[do] DOI: | 10.1186/s12877-017-0481-9 |
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