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Pesquisa : K01.517.211.215 [Categoria DeCS]
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  1 / 1054 MEDLINE  
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PMID:28431515
Autor:Elfrink TR; Zuidema SU; Kunz M; Westerhof GJ
Endereço:Department of Psychology, Health and Technology, University of Twente, P.O. Box 217, 7500, AE, Enschede, The Netherlands. t.r.elfrink@utwente.nl.
Título:The effectiveness of creating an online life story book on persons with early dementia and their informal caregivers: a protocol of a randomized controlled trial.
Fonte:BMC Geriatr; 17(1):95, 2017 Apr 21.
ISSN:1471-2318
País de publicação:England
Idioma:eng
Resumo:BACKGROUND: Dementia has a high burden for patients, informal caregivers and society. Given changes in care systems, more persons with dementia will live longer at home. However, living at home (with dementia) with a good quality of life is not easy to achieve. Dementia is often accompanied by neuropsychiatric symptoms like apathy, agitation, depression, and anxiety, which have a negative impact on quality of life. Whereas cognitive deterioration can hardly be influenced, it is possible to reduce neuropsychiatric symptoms. As autobiographical memories remain intact for a relatively long time in dementia, reminiscence interventions can promote feelings of pleasure and trust. The Online Life Story Book (OLSB) allows to digitally share memories (stories, pictures, video or audio fragments). The main objective is to study the effects of the OLSB on neuropsychiatric symptoms. The study has four secondary objectives: 1) to study the effectiveness of the intervention on the burden and quality of life of the primary informal caregiver; 2) to provide a preliminary health-economic evaluation; 3) to study the (time to) nursing home admittance as a longer term effect; 4) to provide a process evaluation. METHODS AND DESIGN: A randomized controlled trial with individual randomization to one of two conditions is conducted: 1) intervention "Online Life Story Book"; 2) control condition (care as usual). Participants are persons with early dementia and their primary caregivers. In the intervention OLSB, a trained volunteer guides the participants through the process of putting together a timeline of their lives during 5 meetings within a period of 8-10 weeks. To assess the effects of the intervention on the primary outcome, neuropsychiatric symptoms, the Neuropsychiatric Inventory (NPI) will be assessed at three time points: before the intervention (baseline, T0), 3 months (T1) and 6 months (T2) post baseline. DISCUSSION: When proven effective, the Online Life Story Book can be a valuable addition to the existing provision of care for persons with dementia and their informal caregivers. TRIAL REGISTRATION: This study has been approved by the Twente Medical Ethics Committee under the file number p16-04 (Dutch Trial Register: NTR5939 , date of registration: 14 March 2016).
Tipo de publicação: JOURNAL ARTICLE; RANDOMIZED CONTROLLED TRIAL


  2 / 1054 MEDLINE  
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PMID:28215758
Autor:Banerjee M; Wohlmann A; Dahm R
Endereço:Johannes Gutenberg University Mainz, American Studies, Jakob-Welder-Weg 18, 55128 Mainz, Germany. Electronic address: mita.banerjee@uni-mainz.de.
Título:Living autobiographically: Concepts of aging and artistic expression in painting and modern dance.
Fonte:J Aging Stud; 40:8-15, 2017 Jan.
ISSN:1879-193X
País de publicação:England
Idioma:eng
Resumo:This article discusses the ways in which artists have incorporated or failed to incorporate the aging process of their bodies into their art. Using Russian ballet dancer Mikhail Baryshnikov and the French painter Claude Monet as cases in point, we explore situations in which physical changes brought about by aging compromises artists' ability to engage with their artistic medium. Connecting Monet's oeuvre and Baryshnikov's dance performances to life writing accounts, we draw on John Paul Eakin's concept of "living autobiographically": In this vein, life writing research does not only have to take into account concepts of identity as they emerge from life writing narratives, but it also needs to explore the somatic, corporeal and material dimensions of these narratives.
Tipo de publicação: JOURNAL ARTICLE


  3 / 1054 MEDLINE  
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PMID:27587488
Autor:Wistrand J
Título:When doctors are patients: a narrative study of help-seeking behaviour among addicted physicians.
Fonte:Med Humanit; 43(1):19-23, 2017 Mar.
ISSN:1473-4265
País de publicação:United States
Idioma:eng
Resumo:In recent decades studies based on questionnaires and interviews have concluded that when doctors become ill they face significant barriers to seeking help. Several reasons have been proposed, primarily the notion that doctors' work environment predisposes them to an inappropriate help-seeking behaviour. In this article, the idea of the ill physician as a paradox in a medical drama is examined. Through a text-interpretive and comparative approach to historical illness narratives written by doctors suffering from one specific diagnosis, namely opioid addiction, the complex set of considerations guiding their behaviour as patients are to some extent revealed. The article concludes that, in the identity transition necessary to become a patient, doctors are held back by their professional status and that every step to assist them needs to take shape based on an awareness of the underlying principles of the medical drama. Written illness narratives by doctors, such as those highlighted in this article, might serve as a tool to increase such awareness.
Tipo de publicação: JOURNAL ARTICLE
Nome de substância:0 (Analgesics, Opioid)


  4 / 1054 MEDLINE  
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PMID:27216932
Autor:Farrell L; Bourgeois-Law G; Ajjawi R; Regehr G
Endereço:Island Medical Program, Department of Internal Medicine, Faculty of Medicine, University of British Columbia, Victoria, BC, Canada. lfarrell@uvic.ca.
Título:An autoethnographic exploration of the use of goal oriented feedback to enhance brief clinical teaching encounters.
Fonte:Adv Health Sci Educ Theory Pract; 22(1):91-104, 2017 Mar.
ISSN:1573-1677
País de publicação:Netherlands
Idioma:eng
Resumo:Supervision in the outpatient context is increasingly in the form of single day interactions between students and preceptors. This creates difficulties for effective feedback, which often depends on a strong relationship of trust between preceptor and student. Building on feedback theories focusing on the relational and dialogic aspects of feedback, this study explored the use of goal-oriented feedback in brief encounters with learners. This study used autoethnography to explore one preceptor's feedback interactions over an eight-month period both in the ambulatory setting and on the wards. Data included written narrative reflections on feedback interactions with twenty-three learners informed by discussions with colleagues and repeated reading of feedback literature. Thematic and narrative analyses of data were performed iteratively. Data analysis emphasized four recurrent themes. (1) Goal discussions were most effective when initiated early and integrated throughout the learning experience. (2) Both learner and preceptor goals were multiple and varied, and feedback needed to reflect this complexity. (3) Negotiation or co-construction of goals was important when considering the focus of feedback discussions in order to create safer, more effective interactions. (4) Goal oriented interactions offer potential benefits to the learner and preceptor. Goal oriented feedback promotes dialogue as it requires both preceptor and learner to acknowledge and negotiate learning goals throughout their interaction. In doing so, feedback becomes an explicit component of the preceptor-learner relationship. This enhances feedback interactions even in relatively brief encounters, and may begin an early educational alliance that can be elaborated with longer interactions.
Tipo de publicação: JOURNAL ARTICLE


  5 / 1054 MEDLINE  
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PMID:27992889
Autor:Rybak-Korneluk A; Wichowicz HM; Zuk K; Dziurkowski M
Endereço:Klinika Chorób Psychicznych i Zaburzen Nerwicowych Katedry Chorób Psychicznych GUMed w Gdansku.
Título:Autobiographical memory and its meaning in selected mental disorders.
Título:Pamiec autobiograficzna i jej znaczenie w wybranych zaburzeniach psychicznych..
Fonte:Psychiatr Pol; 50(5):959-972, 2016 Oct 31.
ISSN:2391-5854
País de publicação:Poland
Idioma:eng; pol
Resumo:This paper presents the general characteristics of the phenomenon of autobiographical memory (AM), the current knowledge of the subject and describes hitherto identified distortions of AM in mental disorders.AM is the part of memory concerning the personal past of an individual. It includes episodic and semantic memories associated with an identity. It affects an activity and structuring of goals, it is set in human experience and emotions and it helps in creating plans. The evolutionary sig-nificance of AM is probably to facilitate short-term goal-oriented behaviors by comparing them with the previous ones. People with AM disorders often have difficulties in social functioning.The disorders of emotional life and affect, which are present in most psychiatric disorders, deform AM. It was confirmed, inter alia, in post-traumatic stress disorder, depression, autism, schizophrenia, and alcohol dependence syndrome. Overgeneral memories (the inability to recall memories that are fully filled with details) being typical of depression, and flashbacks (the involuntary recall of memories which are highly filled with visual-sensory content) being characteristic of PTSD are considered one of the most studied deficiency of AM. The study of AM potentially carries many cognitive and clinical implications. It may facilitate the prediction of the onset of a depressive episode in patients at risk; it can also help to develop psychotherapeutic techniques which are helpful in its treatment, which has in part already taken place. Few studies relate to neurofunctional changes in AM and they need a follow-up.
Tipo de publicação: JOURNAL ARTICLE; REVIEW


  6 / 1054 MEDLINE  
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PMID:27795454
Autor:Gainty C
Título:The Autobiographical Shoulder of Ernest Amory Codman: Crafting Medical Meaning in the Twentieth Century.
Fonte:Bull Hist Med; 90(3):394-423, 2016.
ISSN:1086-3176
País de publicação:United States
Idioma:eng
Resumo:This essay offers a reconsideration of the historical significance of Ernest Amory Codman's autobiographical preface to his 1934 text The Shoulder, Rupture of the Supraspinatus Tendon and Other Lesions on or about the Subacromial Bursa and its reception, in its own time and at the end of the twentieth century. It concentrates on the aesthetics of identity and the ways in which these are woven into the political, professional, and cultural contexts of these two periods. It argues finally that Codman's style of life writing, both in the autobiography and throughout his texts, served as an important historical actor that more generally demonstrates the possibilities in approaching the history of medicine from aesthetic angles. In this way, it also calls for a tabling of the more canonical concerns about the American medical profession in the twentieth century in order to focus more empirically on questions concerning the development of medical meaning more broadly conceived.
Tipo de publicação: BIOGRAPHY; HISTORICAL ARTICLE; JOURNAL ARTICLE; PORTRAITS
Nome de pessoa como assunto: Codman EA


  7 / 1054 MEDLINE  
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PMID:27638581
Autor:Suzuki K
Endereço:92suzuki3@gmail.com, kunihiko-suzuki@umin.ac.jp.
Título:My encounters with Krabbe disease: A personal recollection of a 40-Year journey with young colleagues.
Fonte:J Neurosci Res; 94(11):965-72, 2016 Nov.
ISSN:1097-4547
País de publicação:United States
Idioma:eng
Resumo:In this hybrid of a personal essay and a subjective review, I am attempting to convey the sense of an adventure I myself experienced in exploring various aspects of Krabbe disease, which occupied a significant portion of my life as a biomedical researcher. This is meant to be a personal summary, and I have no pretense of this being an objective scholarly review. Since the first description of the disease by Krabbe 100 years ago, knowledge about the disease has advanced significantly. The main contributions from my laboratory, always the fruits of dedicated efforts of talented young colleagues, include the identification of the genetic defect as deficiency of galactosylceramidase, proposal of the psychosine hypothesis as the pathogenetic mechanism to explain the unique phenotypic characteristics of the disease, detailed delineations of the substrate specificities of the two lysosomal ß-galactosidases, discovery of the twitcher mutant as a convenient and useful mouse model, and identification of saposin A as a specific galactosylceramide activator protein and as the second causative gene for globoid cell leukodystrophy. Now, attempts are being made in many laboratories for meaningful therapy, unthinkable when I started working on this disease. Despite these advances, there are still many unknowns and uncertainties about Krabbe disease waiting to be clarified. © 2016 Wiley Periodicals, Inc.
Tipo de publicação: HISTORICAL ARTICLE; JOURNAL ARTICLE; PORTRAITS
Nome de substância:EC 3.2.1.46 (Galactosylceramidase)


  8 / 1054 MEDLINE  
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PMID:27565167
Autor:Hsy J
Endereço:The George Washington University, 801 22nd Street NW, Phillips 624B, Washington, DC, 20052, USA. jhsy@gwu.edu.
Título:Symptom and Surface: Disruptive Deafness and Medieval Medical Authority.
Fonte:J Bioeth Inq; 13(4):477-483, 2016 Dec.
ISSN:1176-7529
País de publicação:Netherlands
Idioma:eng
Resumo:This essay examines constructions of deafness in medieval culture, exploring how deaf experience disrupts authoritative discourses in three textual genres: medical treatise, literary fiction, and autobiographical writing. Medical manuals often present deafness as a physical defect, yet they also suggest how social conditions for deaf people can be transformed in lieu of treatment protocols. Fictional narratives tend to associate deafness with sin or social stigma, but they can also imagine deaf experience with a remarkable degree of sympathy and nuance. Autobiographical writing by deaf authors most vividly challenges diagnostic models of disability, exploring generative forms of perception that deafness can foster. In tracing the disruptive force that deaf experience exerts on perceived notions of textual authority, this essay reveals how medieval culture critiqued the diagnostic power of medical practitioners. Deafness does not simply function as a symptom of an individual problem or a metaphor for a spiritual or social condition; rather, deafness is a transformative capacity affording new modes of knowing self and other.
Tipo de publicação: HISTORICAL ARTICLE; JOURNAL ARTICLE


  9 / 1054 MEDLINE  
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PMID:27421342
Autor:Vanhoutte B; Nazroo J
Endereço:Cathie Marsh Institute for Social Research, University of Manchester, UK, bram.vanhoutte@manchester.ac.uk.
Título:Life-history data.
Fonte:Public Health Res Pract; 26(3), 2016 Jul 15.
ISSN:2204-2091
País de publicação:Australia
Idioma:eng
Resumo:Life-history data are quantitative, retrospective and autobiographical data collected through event-history calendars. By mimicking the structure of our memories, these instruments can gather reliable information on different dimensions of the lifecourse. Life-history data enable the duration, timing and ordering of events to be brought to the foreground of analysis. Extending the scope of lifecourse research, life-history data make it possible to examine the long-term effects of past policies with more precision and detail.
Tipo de publicação: JOURNAL ARTICLE


  10 / 1054 MEDLINE  
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PMID:26972068
Autor:Jurecic A; Marchalik D
Endereço:Department of English, Rutgers University, New Brunswick, NJ 08901, USA. Electronic address: ann.jurecic@rutgers.edu.
Título:The literary legacy of Oliver Sacks.
Fonte:Lancet; 387(10021):835, 2016 Feb 27.
ISSN:1474-547X
País de publicação:England
Idioma:eng
Tipo de publicação: HISTORICAL ARTICLE; JOURNAL ARTICLE



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